The Problem We Address


Babies with high-level medical needs stand to benefit considerably from well-orchestrated care coordination at the very beginning of their lives.
  • Most medically complex patients do not qualify for care coordination through their healthcare insurance.

    • For those that do, the impact is limited as it can takes six months to get approved for services - often times too late.

    • Often these care coordinators are juggling caseloads of as many as 75 children - too many to be truly effective.

  • Many well-intentioned parents are unable to coordinate this high-level of care on their own.

    • May feel inundated as they try to cope emotionally with their baby’s long-term illness.

    • A trip anywhere outside the home is difficult because most of these babies depend on assistive devices such as ventilators, monitors or feeding tubes.

    • Often, the result from these difficult situations is inadequate follow-up care that leads to multiple trips back to the Emergency Department and hospital readmissions because their baby’s health has not been well managed.

  • These patients are usually seen by many medical specialists to treat and monitor disorders in different organ systems.

    • To survive, they must undergo multiple surgeries, needle sticks, anesthesia and other procedures.

    • For babies who have left the hospital, eliminating the need for another doctor visit is frequently the best choice if care can be provided at home or if care can be accomplished with fewer trips to the hospital.

  • Little Heroes League provides funding to our partner hospital, Lurie Children’s, to provide specialized care coordination during this critical period and after discharge from the hospital.